personalized 1-on-1's guiding your ongoing cancer journey.
Some call it patient advocacy, some call it patient navigation, we call it Cancer Beacons by Cancer Revengers because a beacon is a guide. We believe in a guided personal patient experience for all adults and pediatric solid cancer patients.
The goal of our virtual video calls is, in the end, to provide a "safety net" for you and your provider, enabling you both to look at one another in the eye and know that, "We looked at everything," leaving nothing on the table.
What we help with is:
- Accessing functional precision (personalized) medicine (live tissue drug screening)
- Off-label use / drug repurposing insurance approvals
- Understanding and navigating off-label use state law hurdles
- Clinical trial search, anecdotal to-date results from PI's, selection
- Peer reviewed paper search to share with your provider
- 1-on-1 conversations between us and your team leads
- What questions to be asking your team
- Ongoing communication with your entire medical team
- Medical tech talk translation / interpretation
- Second opinion coordination
- Virtually attending meetings with your team, even clinic visits
- Impassioned compassionate use pleas to drug manufacturers
- And so much more
We aim to work alongside you as well as to integrate with your team so that we can provide seamless end-to-end support that your team may not have the time for or expertise in as the answers for some of the toughest cases reside in the wild west which can be difficult to comprehend and get insurance approval for.
We help with all of this and are led by our co-founder who is a member of the Medulloblastoma Working Group, the Ependymoma Working Group, the Society for Functional Precision Medicine and a Special Guest Lecturer at Harvard Medical School despite him not being an MD or having a PhD. The story of how this all came to be, can be seen here in a story done by Fox.
We have facilitated many "better than would have been" outcomes for patients. This is highlighted by one patient given two weeks to live with the case declared "inoperable" in early 2023. We quickly coordinated a 2nd opinion by best in class team in less than 24-hours, the patient relocated temporarily to receive a gross total resection, and is still alive today with no evidence of disease.
Special note, we do not and are not allowed to, by law, give medical advice. We instead aim to help ensure you do get the best advice possible.